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About IRDiRC
Members
- Scientific Committees
- Constituent Committees
Activities
Our impact
- Publications
- Testimonies
Rare Diseases Resources
- Rare Diseases Metrics
- Recognized Resources
News & Events
- News
- Events
- Newsletter
Contact us

IRDiRC Members Describe IRDiRC in One Word

IRDiRC - IRDiRC Members Describe IRDiRC in One Word

05 Nov
2025

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Latest Posts

Showcase Your Work at ECRD 2026 — Europe’s Largest Rare Disease Event
Highlights from the World Orphan Drug Congress 2025
New IRDiRC Publication – Regulatory sandboxes: A new frontier for rare disease therapies
New IRDiRC Publication: “What Matters Ethically About How the UDN Has Changed Since Its Inception”
New IRDiRC Publication: “Applying the international rare disease research consortium (IRDiRC) N-of-1 therapy task force eligibility criteria for individualised therapies use case: Duchenne muscular dystrophy”

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The Scientific Secretariat of IRDiRC is supported by the European Union’s Horizon Europe research and innovation programme, through the European Rare Diseases Research Alliance (ERDERA), under grant agreement N°101156595. Views and opinions expressed are those of the author(s) only and do not necessarily reflect those of the European Union or any other granting authority, who cannot be held responsible for them.