International Conference on Clinical Research Networks for Rare Diseases

The International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on Rare Diseases (EJP RD) are jointly organizing a conference on clinical research networks (CRNs) for rare diseases. 

CRNs offer a tremendous opportunity for patients and multi-disciplinary teams to collaborate, share expertise, gain better understanding on rare diseases, and accelerate clinical research and innovation. However, global collaborative efforts to connect groups and networks often working on a national or continental level are still missing.    

The objective of this conference is to gather experts from different continents to increase mutual knowledge on CRNs structure, activities and identify pathways to stimulate collaboration and interoperability of these networks.  

The conference will start on the 1st of December 2022 at 1.45 pm CET, and end on the 2nd of December 2022 at 1 pm CET. 

It is not possible anymore to register for in-person participation. To register for online participation, please complete this registration form.  

If you have any specific questions, please contact scisec-irdirc@ejprarediseases.org or coordination@ejprarediseases.org  

See the agenda here.

You will find the speakers’ biosketches here.