The United Nations Political Forum on Sustainable Development (HLPF) is co-organising a High-Level Side Event titled “On the road towards COVID-19 recovery & delivery of the Sustainable Development Goals – Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority” along with the NGO Committee for Rare Diseases, Rare Diseases International and EURORDIS.
The fully online event will take place on July 7th from 14.00 – 15.30 CET.
The Side-Event is a major milestone for the rare disease community at the United Nations. It will be an opportunity to discuss a proposed UN Resolution on Persons Living with a Rare Disease and their Families as well as support for the initiative. The call is supported by is a Core Group of Member States (Brazil, Spain, and Qatar).
Within the context of the Sustainable Development Goals (SDGs), supporters of the call urge the countries of the UN to address the needs of persons living with a rare disease as an opportunity to build more inclusive societies, realise the promise to “leave no one behind” expressed in Agenda 2030, and learn from the lessons of the COVID-19 pandemic.
More information and registration here: https://us02web.zoom.us/webinar/register/WN_06nqC4E0S_ifw75SoKQDiw