Tag: orphan disease center

The Orphan Disease Center – Million Dollar Bike Ride

Every year, the Orphan Disease Center offers research opportunities focused on over 30 different rare diseases. This one-year grant program to support research related to a rare disease is supported by the Million Dollar Bike Ride. This event will take place on June 8th 2024 in Philadelphia (USA) and registration is open for this year […]

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Global Genes – RARE Drug Development Symposium

Just less than a month from the start of the RARE Drug Development Symposium, an event co-hosted by Global Genes and Orphan Disease Center of the University of Pennsylvania. The Symposium equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities. This year’s theme is Innovative Ideas from […]

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Project CASK Grant Program – Now accepting applications!

Project CASK, in collaboration with Orphan Disease Center, is seeking proposals to advance research that supports therapeutic development for CASK gene disorders. The project will consider applications that will make a significant impact on the CASK community and the prospects for accelerating therapeutic development in one of two categories: 1) Grants to expand the study […]

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