IRDiRC has three Scientific Committees, one each for Diagnostics, Therapies and Interdisciplinary aspects of rare diseases research. The Therapies Scientific Committee (TSC) is a multi-stakeholder, multi-disciplinary group of experts in medical research and therapy development in rare diseases. Specifically, the TSC is devoted to pursuing the therapeutic development of IRDiRC, supporting the rare diseases research community in achieving goal 2, “1000 new rare disease treatments by 2027.”
To best represent the worldwide rare diseases community in its full width and complement the current membership, the TSC has two openings for new members who are from the following regions: Africa, Asia, Australasia or South America. Interested candidates are invited to send their resume, bioskech and letter of motivation to scisec-irdirc[at]ejprarediseases.org before the 15th of June 2021.
As such, we are looking for rare disease experts from these regions with the following qualities:
- Expertise in medicines or medical devices (experience in Advanced Therapy Medicinal Products (ATMPs), or artificial intelligence and/ or machine learning as applied to medical research)
- Expertise from an industry, regulatory or Health Technology Appraisal fields
- Able to commit to monthly teleconferences, a yearly meeting and regular committee activities and email correspondence