IRDiRC has four Scientific Committees. The Therapies Scientific Committee (TSC) is a multi-stakeholder, multi-disciplinary group of experts in medical research and therapy development in rare diseases. Specifically, the TSC is devoted to pursuing the therapeutic development of IRDiRC, supporting the rare diseases research community in achieving goal 2, “1000 new rare disease treatments by 2027.”
We would like to broaden the committee membership, to represent the worldwide rare diseases therapies community in its full width, from early innovation towards regulatory approval and therapeutic support of patients. As such, the TSC has three openings for new members. We are looking for rare disease experts from different backgrounds with the following qualities:
- Demonstrable track record in contributing to rare disease therapeutic development in either medicines and/ or medical devices (could be Industry, Regulatory, Research and Academia, Health Technology Appraisal / Payer, Clinical care)
- Expertise will be considered from across the therapeutic spectrum, including from prevention, management, quality of life support to curative care
- Commitment to active contribution at monthly teleconferences, a yearly face-to-face meeting and regular TSC activities, article drafting, and email correspondence
If you are interested, please send before the 6th of April 2025 a CV, biosketch and letter of motivation to the scientific.secretariat[at]irdirc.org.