We are pleased to announce that Stefano Benvenuti, Head of Public Affairs at Fondazione Telethon (Italy), and Naveed Aziz, Vice President of Research and Innovation at Genome Canada (Canada), have been elected as the Chair and Vice Chair, respectively, of the Funders Constituent Committee (FCC).
About the FCC
The IRDiRC Funders Constituent Committee’s principal mission is to ensure high-level coordination of funding initiatives, in order to maximize the impact of rare disease research. This is achieved by:
- Aligning strategic priorities across funders;
- Preventing unnecessary duplication of efforts;
- Systematically identifying funding gaps in rare disease research.
With the new leadership of Stefano Benvenuti and Naveed Aziz, the FCC is well-positioned to strengthen collaboration across global funders and accelerate progress.
We extend our sincere congratulations to Stefano Benvenuti and Naveed Aziz for their election. We look forward to working with them, and to the positive impact their leadership will bring to rare disease research worldwide.
More information about FCC: https://irdirc.org/funders-constituent-committee-fcc/