The IRDiRC Funding Models for Rare Diseases Research Toolbox is designed to support patient advocacy organizations in gaining a clearer understanding of the roles, objectives, and funding strategies employed by various types of funders.
This toolbox serves as a companion resource to the IRDiRC manuscript titled “The Complexity of Funding Rare Disease Research: An IRDiRC Assessment of the Landscape,” published in the Rare Disease and Orphan Drugs Journal in September 2024.
More information about the Funding Models Task Force: https://irdirc.org/funding-models-to-support-the-spectrum-of-rare-disease-research-and-development/