IRDiRC is proud to have gathered experts, researchers, patient advocates, and industry leaders at its annual 2-days Consortium Assembly – Scientific Committees Meeting on 3-4 March, 2025, in Brussels, Belgium.
Key takeaways from the meeting:
- Cross-committee discussions fostered new perspectives on diagnostics, therapies, and global regulatory frameworks.
- Models of care were explored to enhance patient-centered approaches and care coordination.
- Regulatory sandboxes emerged as a potential game-changer for accelerating access to rare disease treatments.
- Sustainability of ultra-personalized therapies was identified as a critical challenge requiring innovative funding models.
- The rise of digital health technologies was highlighted as a catalyst for improving diagnosis, treatment, and patient support.
These two days have been a testament to the importance of collective action. By breaking silos and fostering international cooperation, we are making tangible progress toward a future where rare disease patients receive faster diagnoses, better treatments, and improved care.
We are sending our sincere gratitude to all IRDiRC members who participated both in-person and online.