The Indian Organization for Rare Diseases (IORD) has undertaken several initiatives recently to enhance the public profile of rare diseases in India.
On the occasion of Rare Disease Day 2022 (February 28th), a press conference was called at the State Information & Public Relations Department in Hyderabad, India as a collaborative effort between IORD and the Telangana State Government. Electronic, print, and audio media were briefed about the importance of rare diseases. The press meet was followed by a grand and simultaneous illumination of the historic Moazzam Jahi Market and the modern Durgam Cheruvu Cable Bridge with logos of Rare Disease Day, IORD, and the slogan “I am not alone.” IORD received complimentary messages from the Governor of Telangana State and the Vice President of India.
On March 24th – 25th, the Indian Express group (a leading media group in India) organized its Financial Express Pharma Summit 2022 for which IORD was invited. This included a session dedicated to rare diseases featuring IORD President and CEO Dr. Ramaiah Muthyala as the chief speaker. Recordings of this session are available on the website of the event.