A new IRDiRC publication, “Fostering International Interoperability of Clinical Research Networks to Tackle Undiagnosed and Under-Researched Rare Diseases” is now available.
This publication highlights the outcomes of a 2022 global meeting hosted by the International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on Rare Diseases (EJP RD), which convened key stakeholders to discuss strengthening Clinical Research Networks (CRNs) for rare diseases. The article covers:
- The current state of CRNs and the need for new networks
- Multi-stakeholder perspectives on the value of CRNs
- Strategies for global collaboration and knowledge-sharing
- How coordinated, multi-stakeholder efforts can accelerate complex collaborations essential for CRNs
Read the full article here: https://doi.org/10.3389/fmed.2024.1415963