IRDiRC Patient Advocates Constituent Committee (PACC) member, Genetic Alliance, is pleased to announce that 9 new clinical sites and 1 new laboratory joined the iHope program network, further strengthening the ability to reach families with rare genetic conditions. In addition, Dr. Jennifer Troyer, has joined the staff to support the continued growth and impact of iHope.
Thanks to the dedication of iHope partners and community:
• More than 3,000 children have now been sequenced;
• More than 1,500 diagnoses have been reached, helping families finally get answers.
Every diagnosis represents a child, a family, and a step forward for the rare disease community.
More information about iHope:
https://ihopegenetichealth.org/
- 16 Apr
- 2026