Skip to content

IRDiRC IRDiRC
  • About IRDiRC
    • Why we exist
    • Vision and goals  
    • Governance
    • Meet our team
  • Members
    • Scientific Committees
    • Constituent Committees
    • Member Organizations
  • Activities
    • Task Forces & Working Groups
    • Meeting Reports
    • State of Play
  • Our impact
    • Publications
    • Testimonies
  • Rare Diseases Resources
    • Rare Diseases Metrics
    • Recognized Resources
  • News & Events
    • News
    • Events
    • Newsletter
  • Contact us
    • Become a Member
    • FAQ
    • Contact Us
IRDiRC
  • About IRDiRC
    • Why we exist
    • Vision and goals  
    • Governance
    • Meet our team
  • Members
    • Scientific Committees
    • Constituent Committees
    • Member Organizations
  • Activities
    • Task Forces & Working Groups
    • Meeting Reports
    • State of Play
  • Our impact
    • Publications
    • Testimonies
  • Rare Diseases Resources
    • Rare Diseases Metrics
    • Recognized Resources
  • News & Events
    • News
    • Events
    • Newsletter
  • Contact us
    • Become a Member
    • FAQ
    • Contact Us

1

IRDiRC - News- EIKRA - 1
  • Posted onSeptember 14, 2017

Leave a Reply Cancel reply

You must be logged in to post a comment.

Search

Categories

  • IRDiRC
  • News
  • Non classé

Popular Tags

afm telethon ANR beacon conference cord crn Drug Repurposing DSC ECRD efpia ema ERDERA european commission eurordis event fda fondazione telethon funding funding opportunity grant grants ihi irdirc membership NIH ninds orphan disease center orphan drugs publication rare disease day rare diseases rdi rd moonshot react congress regulatory research sanofi solve-rd summer school survey task force training webinar WODC wodc usa

Latest Posts

  • New IRDiRC Publication: Leveraging precompetitive collaborations for rare diseases
  • IRDiRC announces new members to its Diagnostics Scientific Committee
  • New IRDiRC Publication: Engaging children, adolescents and young adults living with rare diseases as research partners: practical considerations for meaningful involvement
  • Registrations are now open for RE(ACT) Congress 2027!
  • FDA Approves First Gene Therapy for Pediatric Patients with Sanfilippo Syndrome Type A

CONTACT US

IRDiRC, Fondation Maladies Rares 96 rue Didot, 75014 Paris, France

contact us

STAY INFORMED

DISCLAIMER

This site is provided on an “as available” basis. While IRDiRC believes the content on this site to be correct, IRDiRC makes no representations or warranties regarding the accuracy, completeness, currency or intellectual property rights of or relating to any content displayed. Disclaimer

FUNDING

The Scientific Secretariat of IRDiRC is supported by the European Union’s Horizon Europe research and innovation programme, through the European Rare Diseases Research Alliance (ERDERA), under grant agreement N°101156595. Views and opinions expressed are those of the author(s) only and do not necessarily reflect those of the European Union or any other granting authority, who cannot be held responsible for them.

IRDiRC
© Copyright IRDiRC 2026