Research Projects Funded by Members

 
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Number of New Research Projects Funded by IRDiRC Funding Bodies

IRDiRC members include funding organizations (i.e., funding bodies, groups of funders (for small funders), companies) investing more than 10 million USD over 5 years in rare disease research. These organizations fund a number of research projects. The Scientific Secretariat collects data on these funding calls and projects each year (starting from 2010 onward) from its members. All data shown below is self-declared and the below may not reflect the total number of new research projects funded by all IRDiRC funding bodies.

CountryOrganization2010201120122013201420152016Total
AustraliaWestern Australian Department of Health (WA Health)1882937
CanadaCanadian Institutes for Health Research (CIHR)2345301246156
CanadaGenome Canada1020003
ChinaBeijing Genomics Institute (BGI)NANANANANANANA
ChinaChinese RareDisease Consortium (CRDC)NANANANANANANA
EuropeE-RARE Consortium161112121419892
EUEuropean Commission (EC)311737293019163
FinlandAcademy of Finland1691146652
FranceAgence Nationale de la Recherche (ANR)271916183523138
FranceFrench Foundation for Rare Diseases (Fondation maladies rares)--5068723249271
FranceFrench Muscular Dystrophy Association (AFM)163210254132
GermanyFederal Ministry of Education and Research (BMBF)16-72-732
GeorgiaChildren's New Hospitals Management Group (BAC)NANANANANANANA
ItalyIstituto Superiore di Sanità (ISS)NANANANANANANA
ItalyTelethon Foundation48826243585122366
JapanJapan Agency for Medical research and Development NANANANANANANA
KoreaKorean National Institute of Health11NANANANA2
NetherlandsThe Netherlands Organisation for Health Research and Development (ZonMw)NANA2518
SpainNational Institute of Health Carlos III (ISC III)4743463846222244
UKNational Institute for Health Research (NIHR)--5108427
USAOffice of Orphan Products Development, Food and Drug Administration (OOPD, FDA)155714131872
USANational Cancer Institute (NCI, NIH)3884854803016142268
USANational Eye Institute (NEI, NIH)152722192421128
USANational Human Genome Research Institute (NHGRI, NIH)063104326
USANational Center for Advancing Translational Sciences (NCATS, NIH)-18941032
USANational Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS, NIH)464862355340284
USANational Institute of Child Health and Human Development (NICHD, NIH)494663456143307
USANational Institute of Neurological Disorders and Stroke (NINDS, NIH)1722062012011802201180
USASanford Research721227223

NA: data not available
– : not applicable

 

List of Research Projects Funded by IRDiRC Members

The list below represents the list of research projects funded by IRDiRC members. To access the list of projects click on the name of the institution. These research projects are also accessible from the Orphanet website. They can be queried by disease/gene, category, institution/laboratory, professional, sponsor/funding body and partnership category.

OrganisationList of Funded Projects

Academy of Finland

Japanese Agency for Medical Research and Development (AMED)
Agence National de la Recherche (ANR)
Beijing Genomic Institute (BGI)
Canadian Institutes for Health Research (CIHR)
E-Rare, European Union
European Commission, European Union
Federal Ministry of Education and Research (BMBF), Germany
French Foundation for Rare Diseases, France
French Muscular Dystrophy Association (AFM), France
Genome Canada, Canada
Children's New Hospitals Management Group, Georgia

Istituto Superiore de Sanita
Korea National Institute of Health
Instituto de Salud Carlos III (ISCIII), Spain
Loulou Foundation
National Institute for Health Research, UK
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NIH), USA
National Cancer Institute (NIH), USA
National Center for Advancing Translational Sciences (NIH), USA
National Eye Institute (NIH), USA
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIH), USA
National Institute of Neurological Disorders and Stroke (NIH), USA
National Human Genome Research Institute (NIH), USA
Office of Orphan Products Development from Food and Drug Administration
>Sanford Research, USA
Saudi Human Genome
Telethon Foundation, Italy
The Netherlands Organisation for Health Research and Development, Netherlands
Western Australian Department of Health, Australia