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2017
- November 20-21, 2017 – The Eurobiomed meeting for rare diseases (RARE2017) – Paris, France
- November 14-16, 2017 – Advancing Personalised Medecine with Animal Models (INFRAFRONTIER) – Athens, Greece
- November 13-15 , 2017 – World Orphan Drug Congress Europe 2017 – Barcelona, Spain
- October 17-21, 2017 – ASHG 2017 – Orlando, USA
- September 25-26, 2017 – Translational Medicine 2017 (EATRIS)- Prague, Czech Republic
- September 20-22, 2017 – 16th CRG Symposium: Seventh International Workshop on Genomic Epidemiology – Barcelona, Spain
- September 15, 2017 – 6th Annual RARE Patient Advocacy Summit (Global Genes) – Irvine, USA
- September 12, 2017 – EverydayLife 9th Scientific Workshop – Washington, USA
- September 7-10, 2017 – ICORD 2017 – Beijing, China
- July 13, 2017 – Global Foundation for Peroxisomal Disorders (GFPD) 2017 Scientific Conference – Washington, USA
- June 19-22, 2017 – Bio International Convention – San Diego, USA
- April 6, 2017 – Goed Gebruik Geneesmiddelen – Amsterdam, The Netherlands
- April 5-7, 2017 – Genomics of Rare Disease – Cambridge, UK
- March 20-21, 2017 – Integrating Research and Healthcare for Rare Diseases: a structured cooperation with high community added value – Valletta, Malta
- March 5-8, 2017 – Rare and Undiagnosed Diseases: Discovery and Models of Precision Therapy – Boston, USA
- February 27, 2017 – Rare Diseases Day 2017 – Washington, USA
- February 22-23, 2017 – 2nd Multi-Stakeholder Symposium on Improving Patient Access to Rare Disease Therapies – Brussels, Belgium
- February 10, 2017 – Rare Diseases International Policy Event, The Right to Health: The Rare Disease Perspective – Geneva, Switzerland
- February 8-9, 2017 – 3rd IRDiRC Conference – Paris, France
2016
- November 30 – December 2, 2016 – TEDMED 2016 – Palm Springs, USA
- November 24, 2016 – RareBestPractices Conference – Rome, Italy
- November 15-17, 2016 – World Orphan Drug Congress Europe 2016 – Brussels, Belgium
- November 11, 2016 – Inaugural Meeting of the United Nations NGO Committee for Rare Diseases – United Nations, New York, USA
- November 10-12, 2016 – Pontifical Council for Health Care Workers International Conference on NTDs & Rare Diseases – Vatican City, Italy
- November 1-3, 2016 – World Life Sciences Congress – Beijing, China
- October 19-22, 2016 – ICORD 2016 – Cape Town, South Africa
- October 18-22, 2016 – ASHG 2016 – Vancouver, Canada
- September 22, 2016 – Joint IRDiRC – E-Rare Meeting – Catania, Italy
- September 15, 2016 – NIHR Rare Diseases Translational Research Collaboration symposium – Cambridge, UK
- September 14, 2016 – NCATS Council – Washington, USA
- June 29- July 1, 2016 – Orphan Drugs & Rare Diseases Global Congress 2015 Europe – London, UK
- May 26-28, 2016 – European Congress of Rare Diseases (ECRD) 2016 – Edinburgh, Scotland, UK
- May 5, 2016 – Rare Diseases Clinical Research Network (RDCRN) – USA
- May 4-7, 2016 – American Society for Gene and Cell Therapy – Washington, USA
- April 28-30, 2016 – Regenerative Medicine: Progress and its Cultural Impact – Vatican City, Italy
- April 20-22, 2016 – World Orphan Drug Congress USA – Washington, USA
- April 13-15, 2016 – Genomics of Rare Diseases: Beyond the Exome Conference – Hinxton, UK
- April 3-7, 2016 – International Congress of Human Genetics – Kyoto, Japan
- February 19-20, 2016 – International Undiagnosed Disease Program – Vienna, Austria
2015
- December 7-8, 2015 – Health Economics Global Congress 2015 Europe – London, UK
- November 26-27, 2015 – The Eurobiomed meeting for rare diseases (RARE2015) – Montpellier, France
- November 11-13, 2015 – World Orphan Drug Congress – Geneva, Switzerland
- November 8-10, 2015 – Global Genomic Medicine Collaborative meeting (G2MC) – Singapore, Singapore
- October 22-23, 2015 – Workshop on Research in Rare Diseases – Santa Cruz de Tenerif, Spain
- October 15-16, 2015 – Xth Annual ICORD Meeting – Mexico City, Mexico
- October 13-14, 2015 – Discoveries & Innovations on Orphan Drugs – Mexico City, Mexico
- October 6-10, 2015 – ASHG 2015 – Baltimore, USA
- September 24-26, 2015 – 3rd Ottawa International Conference on Neuromuscular Biology, Disease and Therapy – Ottawa, Canada
- September 23-26, 2015 – The 2nd Zebrafish for Personalised Medicine Conference – Toronto, Canada
- September 15, 2015 – EUCERD Joint Action Final Conference – Luxembourg City, Luxembourg
- August 23-26, 2015 – 36th Annual Conference of the International Society for Clinical Biostatistics – Utrecht, The Netherlands
- August 13-14, 2015 – 1st Australasian Undiagnosed Disease Program (UDP) Workshop – Perth, Australia
- July 2-6, 2015 – Rare diseases crossing borders together – Bialobrzegi, Poland
- June 29 – July 1, 2015 – Orphan Drugs & Rare Diseases Global Congress 2015 Europe – London, UK
- June 28 – July 2, 2015 – The 9th European Zebrafish Meeting – Oslo, Norway
- June 9-11, 2015 – The Global Alliance for Genomics and Health 3rd Plenary Meeting – Leiden, The Netherlands
- June 6-9, 2015 – The European Human Genetics Conference 2015 (ESHG 2015) – Glasgow, UK
- June 2, 2015 – EU-LAC Health Conference – Brussels, Belgium
- May 13-16, 2015 – ASGCT 18th Annual Meeting – (Education Session 134) – New Orleans, USA
- April 22, 2015 – Genotranslation: Interpretation of Genome Data in Diagnostics – Prague, Czech Republic
- March 20, 2015 – Raising Awareness of Rare Diseases – Hyderabad, India
- March 5-7, 2015 – CORD Rare Disease Day 2015 Conference & Gala – Ottawa, Canada
2014
- November 12-14, 2014 – World Orphan Drug Congress Europe 2014 – Brussels, Belgium
- November 4-5, 2014 – TREAT-NMD Global Data Oversight Committee Meeting – Leiden, The Netherlands
- November 1-3, 2014 – Clinical Information Modeling Initiative – Amsterdam, The Netherlands
- October 31, 2014 – International Conference ‘Rare Diseases: Europe’s Challenges’ – Rome, Italy
- October 30, 2014 – E-Rare Symposium – Rome, Italy
- October 29, 2014 – Research Infrastructures to Boost R&D in the Field of Rare Diseases – Fundación ARECES-VHIR, Madrid, Spain
- September 29-30, 2014 – International Conference on Rare and Undiagnosed Diseases – Rome, Italy
- September 18-19, 2014 – Rare Diseases and Orphan Drug Development Initiatives in India: Establishing a National Plan for Rare Diseases and Orphan Drugs – Hyderabad, India
- June 23, 2014 – European Reference Network Conference – Brussels, Belgium
- June 18, 2014 – DIA 2014 50th Annual Meeting – San Diego, USA
- June 12, 2014 – Global Health Policy Forum – Brussels, Belgium
- June 11, 2014 – IRDiRC: Fostering International Collaboration to Produce New Rare Disease Diagnostics and Therapies – Barcelona, Spain
- June 10, 2014 – ICCG 2014 Conference – Bethesda, USA
- May 30, 2014 – IV Jornada del Grupo de Enfermedades Minoritarias del Adulto: de los Aspectos Básicos a las Unidades Expertas – Barcelona, Spain
- May 9, 2014 – 7th European Conference on Rare Diseases and Orphan Products – Berlin, Germany
- March 10, 2014 – Grant Frameworks: Situation in Europe and IRDiRC – London, UK
- February 26-27, 2014 – EU-LAC Health “2nd Roadmapping Workshop” – Madrid, Spain
- February 23-26, 2014 – Joint Annual Meeting EURenOmics, NeurOmics, RD-Connect – Heidelberg, Germany
- January 20-22, 2014 – E-RARE 2014: Scientific Meeting & Strategic Workshop – Athens, Greece
- January 6-7, 2014 – FDA Public Workshop: Complex Issues in Developing Drug and Biological Products for Rare Diseases – Silver Spring, USA
2013
- November 14-15, 2013 – World Orphan Drug Congress – Geneva, Switzerland
- November 10-12, 2013 – International Human Epigenome Consortium Annual Meeting – Berlin, Germany
- October 31 – November 2, 2013 – 8th International Conference on Rare Diseases and Orphan Drugs – Saint Petersburg, Russia
- October 22-26, 2013 – American Society of Human Genetics 2013 – Boston, USA