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Latest Posts
Fondazione Telethon and Orchard Therapeutics complete transfer of marketing authorization of Strimvelis for ADA-SCID in Europe
September 20, 2023
Following a positive opinion from the European Medicines Agency (EMA), the transfer of…
Defining rare conditions in the era of personalized medicine
September 11, 2023
Don’t miss out the new IRDiRC publication developed by Therapies Scientific Committee (TSC)…
New Publication: Making Rare Disease Research Attractive to Companies by IRDiRC Chrysalis Task Force
September 7, 2023
Accessible at https://doi.org/10.1177/26330040231188979, the Chrysalis Task Force identified key financial and non-financial factors…
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