Task Force “Models of Care”

The Interdisciplinary Scientific Committee (ISC) is establishing a Task Force on Models of Care for Care Coordination to assess the current state of the field and generate new knowledge to advance the development, implementation, and evaluation of care-coordination models. The Task Force will also map outcomes into a framework for equitable AI that addresses both EHR-rich and EHR-scarce environments.

IRDiRC is looking for members to populate this Task Force with the above expertise and experience in the following areas:

• Persons living or caring for someone with a rare disease, with experience in navigating care transitions between specialists and social care settings. Ability to identify and articulate care coordination challenges and barriers in care access.

• Clinicians, nurses, healthcare providers with multidisciplinary team care coordination experience, involvement in quality improvement or care pathway design initiatives. Experience in diagnostic workflow analysis, evaluation of clinical decision support tools for quality and effectiveness, and change management within clinical settings.

• Hospital managers with experience in integrated care initiatives, cross departmental stakeholder engagement, organizational business case development and healthcare operations.

• Social care, community services provider or educators with experience in social care or education delivery or navigation, cross sector collaboration, resource mapping and referral coordination for holistic needs.

• Researchers or scientists in health services research, clinical research, implementation research, AI application in health/social care. Experience in developing ethical frameworks and guidelines implementation.

• Health plan representative, payers or health economists with experience in care management or population health programmes, value-based care models, cost-effectiveness and sustainability analysis.

• Policy makers with experience in rare disease policy frameworks, legislation related to health data, interoperability or integrated care, cross-jurisdictional policy coordination.

The call for candidates is open to experts from around the globe.

The usual time commitment includes monthly 1-hour teleconferences, one face-to-face workshop (2 days), regular email correspondence and collaborative working, with the opportunity to co-author peer reviewed article(s).

If you are interested in taking part in this activity, please send a CV, biosketch and letter of motivation clearly describing your expertise to the Scientific Secretariat scientific.secretariat[at]irdirc.org before the 20^th of February, 2026.

Please add in the subject of your email the reference for this call Ref: TF-MC.

Only selected candidates will be contacted