IRDiRC will be well represented at Undiagnosed Day 2026, taking place on 30 April in Gdansk (Poland) and online. The event gathers clinicians, geneticists, and experts to advance phenotype-led diagnosis through live case discussions and collaborative exchange. Inspired by the Wilhelm Foundation’s international Undiagnosed Hackathons, the meeting emphasizes multidisciplinary interaction with patients and families. Dr. […]

The International Rare Diseases Research Consortium will be at the forefront of discussions at World Orphan Drug Congress USA 2026, highlighting innovations in rare disease research, personalized therapies, and sustainable approaches to genetic medicine. Details: Date: 9–11 June 2026 Registration: here Venue: Thomas M. Menino Convention & Exhibition Center, Boston, MA, USA Agenda: here

The third Hope for Rare Science Conference will be held in Shanghai, China from June 25th to 27th, 2026. The conference is hosted by Hope for Rare Foundation, with National Children's Medical Center / Children's Hospital of Fudan University and Chinese Organization for Rare Disorders (CORD) as co-hosts. The conference will last for 3 days, […]