EJP RD – Data Resources and Tools Knowledge Awareness Survey

We are thrilled to announce the launch of the European Joint Programme on Rare Diseases (EJP RD) survey aimed at assessing the knowledge and impact of Rare Diseases research (data) resources and tools developed within the project.

As a member of the Rare Diseases research community, your input is invaluable. This survey will help in understanding how well EJP RD has addressed the gaps in rare diseases research and guide the future efforts in data processing and service provision.

Why Should You Participate?

  • Share your insights and challenges in the field of rare diseases research.
  • Influence the direction of EJP RD’s resources and tools.
  • Contribute to the upcoming European Rare Diseases Research Alliance partnership.

Take the Survey Now! https://forms.office.com/e/JyccyPRQ7t

Together, let’s advance the field of rare diseases research!