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X-WR-CALDESC:Events for IRDiRC
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TZID:Europe/Paris
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DTSTART;VALUE=DATE:20260609
DTEND;VALUE=DATE:20260612
DTSTAMP:20260619T231345
CREATED:20260605T105254Z
LAST-MODIFIED:20260619T092958Z
UID:21698-1780963200-1781222399@irdirc.org
SUMMARY:World Orphan Drug Congress USA 2026
DESCRIPTION:The International Rare Diseases Research Consortium will be at the forefront of discussions at World Orphan Drug Congress USA 2026\, highlighting innovations in rare disease research\, personalized therapies\, and sustainable approaches to genetic medicine. \nDetails: \n\nDate: 9–11 June 2026\nRegistration: here\nVenue: Thomas M. Menino Convention & Exhibition Center\, Boston\, MA\, USA\nAgenda: here
URL:https://irdirc.org/event/world-orphan-drug-congress-usa-2026/
LOCATION:Boston\, USA
ATTACH;FMTTYPE=image/webp:https://irdirc.org/wp-content/uploads/2026/02/1656-world-orphan-drug-congress-usa-2026_pages-to-jpg-0001-1187x1536-1.webp
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260429
DTEND;VALUE=DATE:20260501
DTSTAMP:20260619T231345
CREATED:20260605T105128Z
LAST-MODIFIED:20260619T093003Z
UID:21695-1777420800-1777593599@irdirc.org
SUMMARY:Undiagnosed Day 2026
DESCRIPTION:IRDiRC will be well represented at Undiagnosed Day 2026\, taking place on 30 April in Gdansk (Poland) and online. The event gathers clinicians\, geneticists\, and experts to advance phenotype-led diagnosis through live case discussions and collaborative exchange.\nInspired by the Wilhelm Foundation’s international Undiagnosed Hackathons\, the meeting emphasizes multidisciplinary interaction with patients and families.\nDr. David Pearce\, IRDiRC Chair\, will moderate the session “Clinical cases with and without diagnosis” alongside Shirlene Badger\, Vice-Chair of the Companies Constituent Committee. \nDetails: \n\nDate: 29-30 April\, 2026 (only the sessions on 30 April are open to public)\nVenue: Gdańsk\, Poland\, and online\nRegistration and agenda: here
URL:https://irdirc.org/event/undiagnosed-day-2026/
LOCATION:Gdańsk\, Poland
ATTACH;FMTTYPE=image/webp:https://irdirc.org/wp-content/uploads/2026/04/Visuel-UD.webp
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